Our goal is to learn from patients and their families, to develop a sustainable network and advance the development of research priorities, collaborations, ultimately improving the health care system for older adults
We will work with seniors to:
- Develop the network, and understand what they would like the network to look like
- Develop meaningful partnerships with researchers, policy makers, health care providers and other key stakeholders
- Participate in various health-related research projects
- Take part in regular discussions with the SHARP research team and other stakeholders through online and community events
- Access information, news, and research surrounding patient engagement, health care research and planning, and health system transformation through our website and social media
In the following video we collaborated with SHARP members to find out why they choose to volunteer with SHARP.
The second video interviews older adults with young onset dementia to see how recreational programs that connect them with other older adults and the broader community benefit them.
To date we have over 60 members and have started conducting focus groups with these individuals.
We are discussing with ‘experts’ in the area of patient and citizen engagement, and strive to create a more standard definition for ‘patient and citizen engagement’.
Locally we are continuing recruitment for SHARP (including diverse populations), discussing findings with regional and provincial policy makers, and use findings from the network to advance research priorities.