Get the latest on Murray Alzheimer Research and Education Program (MAREP) initiatives and events, and learn and share with others in the community on MAREP's blog.

Great Great Uncle Horace: His Sad Tale

The Cameronians

Great Great Uncle Horace: His Sad Tale

By: Mary Beth Wighton, Person with Dementia

Date: November 9th, 2017

It was a few years ago while I was doing family research I came across the tragic story of my great great Uncle Horace C. Wighton. I was told we had a Wighton curse on the name Horace. Anyone with this name and was a Wighton has died a horrific death. This was certainly true for my great great uncle.

World Alzheimer’s Month and World Alzheimer’s Day

Jean Baptiste Quote

September is World Alzheimer’s month and today, September 21st, is World Alzheimer’s day!

Since 2012, the World Alzheimer’s Month international campaign has run every September to help raise awareness, combat stigma, and spread correct and positive information about dementia and persons living with it. This September will mark the initiatives 6th year and will encompass the theme of “Remember me”.

Canada's National Dementia Strategy

Mary Beth Wighton Quote

Last month, Bill C-233, an Act respecting a national strategy for Alzheimer’s disease and other dementias, sponsored by the Honourable Rob Nicholson and Rob Oliphant, was passed. Canada will be the 30th country out of 194 members of the World Health Organization to implement a national dementia plan.

To the Nurse Who May Care for Me Today

Blog quote

Hi I am your assignment for today.

I know I am just one of many but I ask you to please take the time to know me. You see I once was also a nurse. That really doesn't matter as I am a human being. I come with an education and feeling. I am also a wife a mother, a grandmother and more. Please take the time to read my chart as you can gain much knowledge about me before you ever meet me. In it you will find my medical history, this may give you a glimpse of what to expect from me. It will tell you what is being treated now. Know full well that, that may not be my only problem.  

Ontario Dementia Advisory Group e-newsletter, April 2017

A Letter from the Chair

APRIL 2017

Hello, ODAG Members, Friends, and Supporters.

The last two months have been very interesting for people living with dementia. It is a time of policy changes, budget allocations and the broadening of the Council of Canadians with Disabilities to formally include people living with dementia.

Nothing About Us Without Us: Huge Ontario Budget Win

For many people living with dementia, our partners and supporters, the Ontario budget 2017 was a great success for us. When ODAG formed in the Fall of 2014, the original Board Members decided to create a group that would focus on creating a loud single voice of those living in Ontario who are living with dementia; and to do this through applying pressure on the government to create and fund a provincial strategy. I'm so pleased to say that we have won a huge win with allocation of money for this important plan.

My Iceberg of Dementia

At this time in my life I feel like an iceberg, drifting through life. I float through the ebbs and waves of life, letting people see only the very tip of who I am. They see the old me. The happy and in control me, most of the time. I am aware that this will change as time moves on but until then this is what I let people see.

When I was a young teenager I watched my grandmother. Her tips were vibrant, but as this discouraging disease progressed, her tips faded till they were no longer visible. This happened to my own mother also. It was very discouraging to watch.

The Mirror of Dementia

I look in the mirror and what do I see.

I see me, that is me. The same me I've always seen when I look in the mirror.

Phyllis Fehr to Represent People with Dementia at the Convention of the Rights of Persons with Disabilities

Phyllis Fehr

From March 20th through April 12th, the Committee on the Rights of Persons with Disabilities will be running. The committee will be examining the implementation of the provisions of the Convention of the Rights of Persons with Disabilities in eight countries, including Canada.

She's One in a Million

Mary Beth and Dawn in Kincardine

Last weekend was a very special date for me. My Partner, Dawn, and I celebrated 15 years of being together. And we did just that – celebrated! We hopped in the car and took a leisurely drive down the
lake road. Our destination was a quaint town with the best sushi restaurant in the area.

In true form, Dawn and I talked and laughed as we reminisced our years of being together. We rarely have the radio on as we seem to always have so much to say to each other. The radio is just a distraction.

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