We’re researching how businesses can engage people with dementia meaningfully and respectfully in the design, testing, and commercialization of apps intended for their use. For this research, we’re looking for people living with dementia to use, test, and provide feedback on a digital memory aid currently being developed. Follow the link for more information.
The Murray Alzheimer Research and Education Program (MAREP) is pleased to offer some additional resources for all those on the dementia journey.
MedicAlert® Safely Home®
The MedicAlert ID and service was originally created to help emergency responders treat people quickly and effectively who couldn’t speak for themselves. Today, the service can also help people living with dementia who go missing.
Visit the Alzheimer Society of Canada web site for information regarding how it works, what is costs and how to register.
Finding Your Way: For people with dementia, every step counts
The program offers tools, information and resources for those living with dementia, their care partners, and community members, to help reduce the risk of going missing and what to do in case it does happen.
Visit the Alzheimer Society of Ontario web site for more information.
Vulnerable Persons Registry (Waterloo Region)
The Vulnerable Persons Registry is a voluntary registry that provides the Waterloo Regional Police Services with emergency contact information, detailed physical descriptions, known routines and special needs of a registered individual. This information will assist officers in communicating with, attending a residence of, or dealing with an emergency involving the individual.
The registry is open to anyone, free of charge, living in the Waterloo, City of Guelph, Stratford and Brantford communities who feels they are vulnerable in times of emergencies and would like an extra assurance. In addition to individuals registering themselves, the parent/legal guardian, or other legal authority of a vulnerable person may voluntarily register an individual who is unable to do so or give consent.
After-hours support for partners in care
"Caring for someone with dementia is a 24-hour a day job" say the Alzheimer Society of Ontario and the Ontario Dementia Network who are working with Telehealth Ontario to help families prevent crises when regular community support services are closed for the evening.
Telehealth Ontario nurses will receive targeted training in dementia protocols to support the service. During regular business hours, callers will be referred to the local Alzheimer Society for help.
Access to after-hours services for dementia partners in care is available by dialling Telehealth Ontario at 1-866-797-0000 after regular business hours, and during weekends and statutory holidays.
Caredove allows you to find and book community health referrals online for services offered in the Waterloo-Wellington area.
Enter your postal code and search for Community Support Services, including Alzheimer's disease and dementia services, and Specialized Geriatric Services, including geriatric medicine, geriatric mental health, consultation and education services, and more.
A Place for Mom
A Place for Mom connects seniors and families to the right senior care so they can save precious time and focus on what's most important. From finding the right nursing home, dementia care or assisted living facility to researching Veteran's benefits and financing senior care, they will be with you each step of the way. All at no cost to you!
A planning framework and Toolkit for improving the lives and care of persons living with Alzheimer's disease and related dementias and their families
This planning framework, developed by the Roundtable on Future Planning for People Affected by Alzheimer's disease and Related Dementias (ADRD), addresses the impact of ADRD on government programs, communities, and Ontario as a whole. The overall aim is to help all those involved in dementia care enhance their effectiveness in supporting people with ADRD and their families and to promote cross-sector linkages and the development of strong partnerships in dementia care.
- ADRD Planning Framework (PDF) (available in French), Roundtable on Future Planning For People Affected by Alzheimer Disease and Related Dementias
- ADRD Planning Framework Brochure (PDF)
- ADRD Planning Framework Toolkit (PDF) (To accompany the ADRD Planning Framework) - A Self-Assessment Tool for individuals and organizations to evaluate and improve their responsiveness to the needs of persons with ADRD and their families.
Considerations for the holidays
This tip sheet provides helpful tips on how to enhance the holiday season and events when with family members living with dementia.
This tip sheet provides helpful tips on how professionals can enhance the holiday season when working with persons living with dementia and their family partners in care.
Living with hope in the midst of change slide show
This slideshow was created from the findings of a study exploring the meaning of leisure for persons living with early stage memory loss. Participants were asked to take photos of objects, people, or places that were meaningful for their leisure. Research revealed that although the participants experienced a great deal of change in their lives, they also felt hope for the present and future. The slide show includes photos taken by participants to present a balanced view of memory loss by highlighting both changes and continued capacities of the participants. It shows that there is indeed “life after diagnosis”.
Thank you to MAREP and the Alzheimer Society of Canada for assisting with participant recruitment.
This study was funded by the Alzheimer Society of Canada.
For more information, please email Rebecca Genoe.
The Memory Boosters Social Club
The Memory Boosters Social Group is a peer led social club that was started in 2012. Our main goal is to provide a warm and supportive place for people with dementia and their care partners to socialize, relax, and have fun together. In addition, we share useful information, such as details about educational seminars, adult day programs, and services that are designed to make living with dementia a little easier.
New members are welcome.
For more information about the group and to join the group, please call 519-742-1422 or e-mail Memory Boosters.
Home Safety is a web page from the Alzheimer's Association that educates others about the relation between dementia and safety around the home. The web page includes a list of tips to make your home more safe and supportive for everyone in the home. In addition, you can find a Home Safety checklist customized to your home. More information can be found on their web page.
Home Hazards is an interactive web page that shows potential hazards in the home. Ensuring that each person in the home is aware of these hazards can help everyone prevent accidents from happening.
Try out the visuals by dragging a hazard into a room on the web page. Hazardous factors include gas, fire, wind, electrical, water, and theft.
The Meaning of Behaviours in Dementia/Neurocognitive Disorders
Understanding the meaning of behaviours in dementia/major Neurocognitive disorder (D/NCD) is being proposed as an essential step in order to make substantive progress in developing pharmacological and behavioural interventions. This text book encompasses the synopsis of the direction sought from behavioural and developmental psychology and dementia literature to achieve the aforementioned goal.
This book will provide a historical overview of the literature on the existing terminology and classification of behaviours in D/NCD, identification of limitations and gaps and proposed future direction in this area of dementia care.
The first essential step in attaining this goal was to develop a comprehensive biopsychosocial model for the occurrence of behaviours in D/NCD; as all existing models are dichotomized along biological and psychosocial paradigms. The second step was identification of criteria to develop a reliable and valid classification system for this BPS model.
This process involved aggregation of individual behavioural symptoms into;
- Clinically meaningful behavioural categories,
- Defining the meaning portrayed by each of these individual behavioural categories, and
- Identification of the specification of the theoretical constructs which justified the aggregation of individual behavioural symptoms into clinically meaningful categories.
In clinical practice, identification of individual behavioural symptoms under each of the identified behavioural category will provide the clinician with a theoretical framework to ascribe the meaning or the purpose for its presence in the patient. This added understanding for the presence of behaviours should assist the clinician in developing behavioural interventions which are sustainable and affordable thereby optimizing the use of medications.
Younger onset dementia
NHS Health Scotland Publications - Younger people with dementia
Younger people with dementia: living well with your diagnosis DVD:
Chapter 1 – Journey to diagnosis
Chapter 2 – Living well with a diagnosis of younger onset dementia
Chapter 3 – Money and Work
Chapter 4 – Information and support
Chapter 5 – Dementia friendly communities: some further thoughts from people living with dementia
For more information, click here for the full 13 chapters of the Younger people with dementia DVD
Planat (Find accessible hotels, restaurants and businesses)
AXS Map (search for accessible spots in your neighbourhood)