Publications and reports

Hands turning pages of a book

Publications associated with MAREP projects


Eating Together study

Way, C., Keller, H., Dupuis, S., and Schindel Martin, L. (in review). Transitions to long-term care: How do families living with dementia experience mealtimes after relocating? Submitted to European Journal of Aging in March 2013.

Genoe, M.R., Keller, H.H., Schindel Martin, L., Dupuis, S.L., Reimer, H., Cassolatto, C., and Edward, G. (2012). Adjusting to mealtime change within the context of dementia.  Canadian Journal on Aging, 31(2), 173-194.

Genoe, R., Dupuis, S.L., Keller, H., Schindel Martin, L., Cassolato, C., and Edward, G. (2010). Honouring identity through mealtimes in the context of dementia. Journal of Aging Studies, 24(3), 181-193.

Keller, H., Schindel Martin, L., Dupuis, S.L., Genoe, R., Edward, G., and Cassolato, C. (2010). Mealtimes and being connected in the dementia context). Dementia: The International Journal of Social Research and Practice, 9(2), 191-213.

Cassolato, C., Keller, C., Dupuis, S., Schindel Martin, L., Edward, G., and Genoe, R. (2010). Meaning and experience of “eating out” for families living with dementia. Leisure/Loisir, 34(2), 107-125.

Keller, H., Smith, D., Kasdorf, C., Dupuis, S., Schindel Martin, L., Edward, G., Cook, C., and *Genoe, R. (2008). Nutrition education needs and resources for dementia care in the community. American Journal of Alzheimer Disease and Related Dementias, Feb/March, 13-22.

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I’m Still Here

Mitchell, G.J., Dupuis, S.L., and Jonas-Simpson, C. (2011). Countering stigma with understanding: The role of theatre in social change and transformation. Canadian Theatre Review, 146, 22-27.

Mitchell, G., Jonas-Simpson, C., Dupuis, S., Whyte, C., Carson, J., and Gillies, J. (2011) The experience of engaging with research-based drama. Evaluation and explication of synergy and transformation. Qualitative Inquiry, 17(5), 379-392.

Jonas-Simpson, C., Mitchell, G., Carson, J., Whyte, C., Dupuis, S.L., and Gillies, J. (2012). Phenomenological shifts for healthcare professionals after I’m Still Here. Journal of Advanced Nursing, 68(9), 1944-1955.

Dupuis, S.L., Gillies, J., Mitchell, G., Jonas-Simpson, C., Whyte, C., and Carson, J. (2011). Catapulting shifts in images, understandings and actions through research-based drama. Family Relations, 60, 104-120.

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Responsive behaviours

Dupuis, S.L., Wiersma, E., and Loiselle, L. (2012). Pathologizing behaviour: Meanings of behaviours in dementia care. Journal of Aging Studies, 26(2), 162-173.

Dupuis, S.L., and Wiersma, E. (2008, Fall). Meanings of Responsive Behaviours: Staff Member's Perspectives and Experiences. Final report prepared for the Alzheimer Society of Canada and the Canadian Nursing Foundation. Waterloo, ON: Murray Alzheimer Research and Education Program. 150 pp.

Dupuis, S.L., Wiersma, E., and Loiselle, L. (2004, December). The nature of responsive behaviours in long-term care settings. Final report prepared for the Ministry of Health and Long-Term Care and the PRCs of South Central Ontario. Waterloo, ON: Murray Alzhiemer Research and Education Program. 129 pp.

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Authentic partnerships

Dupuis, S.L., Gillies, J., Carson, J., Whyte, C., Genoe, R., Loiselle, L., and Sadler, L. (2012). Moving beyond ‘patient’ and ‘client’ approaches: Mobilising authentic partnerships in dementia care. Dementia: The International Journal of Social Research and Practice, 11(4), 428-450.

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Living and celebrating life through leisure

Dupuis, S.L., Whyte, C., Carson, J., Genoe, R., Meschino, L. and Sadler, L. (2012). Just dance with me: An authentic partnership approach in understanding leisure in the dementia context. Special issue on Leisure, Health and Disability of World Leisure Journal, 54(3), 240-254.

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Transitions in long-term care

Sussman, T., and Dupuis, S. (2012). Supporting a relative’s move into a long-term care home: Starting point shapes family members’ transition experiences. Canadian Journal on Aging, 31(4), 1-16.

Sussman, T., and Dupuis, S. (in review). Supporting residents moving into long-term care: Preserving Control and Personhood at Multiple Layers and Stages Promotes Belonging. Submitted to Health and Social Care in the Community in March 2013.

Flynn Reuss, G., Dupuis, S.L., and Whitfield, K. (2005). Easing the transition from community care to long-term care: Family members’ perspectives. Journal of Gerontological Social Work, 46(1), 17-46.

Smale, B., Dupuis, S.L., and Whyte, C. (2007). Family members' perceptions of the transition process. A Research Summary submitted to the Partnerships in Transitional Care Task Group of Champlain Region. Waterloo, ON: Murray Alzheimer Research and Education Program.

Smale, B., Dupuis, S.L., and Whyte, C. (2007). Family members' perceptions of the transition process. A Research Summary submitted to the Partnerships in Transitional Care Task Group of Champlain Region. Waterloo, ON: Murray Alzheimer Research and Education Program.

Smale, B., Dupuis, S.L., and Whyte, C. (2007). Long-term care staff perceptions of the transition experience. A Research Summary submitted to the Partnerships in Transitional Care Task Group of Champlain Region. Waterloo, ON: Murray Alzheimer Research and Education Program.

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Supporting self-management

Wiersma, E. C., Oconnor, D. L., Loiselle, L., Hickman, K., Heibein, B., Hounam, B., and Mann, J. (2016, May). Creating space for citizenship: The impact of group structure on validating the voices of people with dementia. Dementia, 15(3), 414-433. doi:10.1177/1471301216642339

Wiersma, E., Dupuis, S., Kelley, M.L., LeClair, K., Puxty, J., Wilford, R. (submitted). "We have to learn to manage ourselves": Self-management strategies of people living with dementia. Submitted to Canadian Journal on Aging in July 2012.

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Family roles/needs

Gladstone, J. Dupuis, S.L., and Wexler, E. (2007). Ways that families engage with staff in long-term care facilities. Canadian Journal on Aging, 26(4), 391-402.

Gladstone, J., Dupuis, S.L., and Wexler, E. (2006). Changes in family involvement following a relative’s move to a long-term care facility. Canadian Journal on Aging, 25(1), 93-106.

Dupuis, S.L. (2002). Understanding ambiguous loss in the context of dementia care: Adult children’s perspectives. The Journal of Gerontological Social Work, 37(2), 93-115.

Dupuis, S.L., and Norris, J. (2001). The roles of adult daughters in long-term care facilities: Alternative role manifestations. Journal of Aging Studies, 15(1), 27-54.

Dupuis, S.L., and Smale, B.J.A. (2000). Bittersweet journeys: Meanings of leisure in the institution-based caregiving context. Journal of Leisure Research, 32(3), 303-340.

Dupuis, S.L. (2000). Institution-based caregiving as a container for leisure. Leisure Sciences, 22(4), 259-280.

Dupuis, S.L., and Norris, J. (1997). Diversity of experiences: A multidimensional and contextual framework for understanding family member roles in long-term care facilities. Journal of Aging Studies, 11(4), 297-325.

Smale, B.J.A., and Dupuis, S.L. (2004, March). In their own voices: A portrait of dementia caregivers in Ontario. Final report prepared for the Ministry of Health and Long-Term Care and the Ontario Senior's Secretariat as part of Initiative #6 of Ontario's Alzheimer Stratety. Waterloo, ON: Murray Alzheimer Research and Education Program. 105 pp.

Dupuis, S.L., and Smale, B.J.A. (2004, March). In their own voices: Dementia caregivers identify the issues. Final report prepared for the Ministry of Health and Long-Term Care and the Ontario Senior's Secretariat as part of Initiative #6 of Ontario's Alzheimer Stratety. Waterloo, ON: Murray Alzheimer Research and Education Program. 81 pp.

Smale, B.J.A., and Dupuis, S.L. (2004, March). In their own voices: Guiding principles and strategies for change by and for dementia caregivers in Ontario. Final report prepared for the Ministry of Health and Long-Term Care and the Ontario Senior's Secretariat as part of Initiative #6 of Ontario's Alzheimer Stratety. Waterloo, ON: Murray Alzheimer Research and Education Program. 23 pp.

Dupuis, S.L., Epp, T., and Smale, B.J.A. (2004, March). Caregivers of persons with dementia: Roles, experiences, supports, and coping. Literature review prepared for the Ministry of Health and Long-Term Care and the Ontario Senior's Secretariat as part of Ontario's Alzheimer Stratety (Initiative #6 Research on Caregiver Needs). Waterloo, ON: Murray Alzheimer Research and Education Program. 111 pp.

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Community access recreation project

Dupuis, S.L., Smale, B.J.A., and *Wiersma, E. (2005). Creating open environments in long-term care settings: An examination of influencing factors. Therapeutic Recreation Journal, 39(4), 277-298.

Dupuis, S.L., Smale, B.J.A., and Wiersma, E. (2003, June). In-house and community access recreation program in long-term care facilities in Canada. Final report prepared for the Murray Alzheimer Research and Education Program, University of Waterloo. Waterloo, ON: Murray Alzheimer Research and Education Program. 118 pp.

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Leisure

Dupuis, S.L., Whyte, C., and Carson, J. (2012). Leisure in long-term care settings. In J. Singleton and H. Gibson (Eds.), Leisure and aging: Theory and practice (217-237). United States: Human Kinetics.

Dupuis, S.L. (2008). Leisure and ageing well. World Leisure Journal, 50(2), 91-107.

Loiselle, L.D., and Dupuis, S.L. (2003, Fall). Let the music do the talking. Aging, Health and Society: News and Views, 9(1), 14-16.

Epp, T., MacPhee, R., Whitfield, K., and Pickett, D. (2001). Measuring the leisure experience of bathing. Senior's Housing Update, 10(2), 17-19.

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Creating dementia friendly communities

Dupuis, S.L. (2010). A planning framework for improving the lives of persons with Alzheimer’s disease and related dementias and their families: Implications for social policy, leisure policy and practice. In H. Mair, S.M. Arai, and D.G. Reid (Eds.),  Decentring work: Critical perspectives on leisure, social policy and human development (pp. 91-117). Calgary, AB: Calgary University Press.

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Gentle persuasive approaches (GPA)

Schindel Martin, L., and Dupuis, S. (2005, July). Gentle Persuasive Approaches (GPA) Curriculum: The development and pilot evaluation of and educational program to train long-term care front-line staff in the management of responsive behaviours of a more catastrophic nature associated with dementia. Final report prepared for the Regional Geriatric Program Central and all partners on the GPA Project. Hamilton, ON: Ruth Sherman Centre for Research and Education.

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Long-term care

Dupuis, S.L., Smale, B.J.A., and Wiersma, E. (2005). Creating open environments in long-term care settings: An examination of influencing factors. Therapeutic Recreation Journal, 39(4), 277-298.

Malott, O. (2000/2001, October/January). Understanding the "personality" of your long-term care facility. Stride, 2-6.

Whitfield, K., and Malott, O. (2000, November/December). Learning as an active process: Involving activity staff in individualized programming. Long Term Care, 4-7.

Epp, T., MacPhee, R., and Allman, A.A. (2001). Let there be light. Canadian Nursing Home, 12(2), 4-9.

Dupuis, S.L, and Smale, B.J.A. (2004, May). Probing the major education concerns and issues of dementia caregivers. Canadian Nursing Home, 15(1), 19-23.

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Persons living with dementia

Epp, T. (2003, Winter). Giving voice: Communicating with persons with dementia. The Caregiver, 5.

Epp. T. (2001). Discrimination and dementism. Vital Aging, 7(3), 3.

Epp, T., and Whitfield, K. (2001/2002, Fall/Winter). Advocacy and health of persons with dementia. Health Promotion Exchange, 12, 5-6.

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