MADRiD: Information and Confidentiality

Intake Interview:

Individuals interested in participating in the MADRiD database will be contacted by the MADRiD coordinator to complete an intake interview. The interview will collect information about you to determine your eligibility for different research projects.

Such information may include:

  • Age
  • Diagnosis
  • Medical history
  • Life style information
  • Contact information

The intake interview may be over the phone, video conference call, or in person, if preferred. Information collected is stored in a secure database at the University of Waterloo.


Confidentiality:

To ensure confidentiality, all information collected by the MADRiD coordinator is stored in a secured database on site at the University of Waterloo. Contact information of participants is only available to approved MADRiD researchers after eligibility for a study has been confirmed. Participants may withdraw consent at any time and may remove their information from the database by contacting the MADRiD coordinator at MAREP.

All studies available for participation through the MADRiD database have received ethical clearance from the Office of Research Ethics at the University of Waterloo.