Living well - Communication - How to share needs and wants with others

Do not be afraid to share your wants and needs with others. It is important that your family and friends know how the disease is affecting you and how you would like to manage it. Having these conversations is also important for planning for the future and what is best for you.

Frequently asked questions

How can I share my needs and wants with others? Click for answer

After receiving a diagnosis of dementia, you might be worried about losing your independence and becoming a burden to your family. Do not be afraid to talk to your family about your feelings. Let them know how the disease is affecting you. It is also good to let them know how their reactions and emotions affect you. Help them to see there are still things you can do for yourself and you want to be active in making decisions. Stay in touch with your friends, family and neighbours. They will want to know how you are doing, even if you are having trouble communicating with them. Friends and neighbours often want to be helpful and they will not judge if you are forgetful sometimes or are having a bad day.

The information above was compiled with permission from Alzheimer Society of Canada. (2014). Shared experiences: Suggestions for those with Alzheimer disease. Toronto, Canada: Alzheimer Society of Canada.

Are there specific issues I should discuss with my family? Click for answer

Conversations with your family members can be productive. It would be a good idea to share your needs and desires for the future with your family at this time. It is also important to talk about your legal and financial affairs and your wishes for your personal care so that it will be easier for your family to respect your wishes in the future. For more information on how you can do this, visit the Planning ahead section of the website.

The information above was compiled with permission from Alzheimer Society of Canada. (2014). Shared experiences: Suggestions for those with Alzheimer disease. Toronto, Canada: Alzheimer Society of Canada.