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People have the right to a say in how their data is collected, managed, stored and used. That’s the principle behind a new partnership that will see the University of Waterloo co-develop governance policies for eye data with a Manitoba First Nations organization.

With more than 1.2 million Canadians living with vision loss, at a cost of $32.9 billion in 2019, researchers, advocacy groups and eye care professionals have called on the federal government to develop a strategy that addresses vision loss more effectively. On November 5, that call was heard when the Senate passed Bill C-284. The bill received royal assent on November 7.