Privacy and data security

Privacy laws, confidentiality standards, data protection rules, de-identification guidance and secure data handling resources

Confidentiality and privacy in health research — Canadian Institutes of Health Research

Data protection — Rules for the protection of personal data inside and outside the European Union (EU)

General Data Protection Regulation (GDPR) guidance for researchers and study coordinators

Personal Health Information Protection Act (PHIPA), section 16, requirement for research plans

Personal Health Information Protection Act (PHIPA), section 44, disclosure for research

Protecting privacy in health research — CIHR best practices

Safeguarding your research — Joint Government of Canada-Universities working group

Securing information — Waterloo Secretariat guidelines

Securing information for research — Waterloo IST guidelines

Security of research participants' data