About Living Well with Dementia

Murray Alzheimer Research and Education Program logoIn the spring of 2008, the Murray Alzheimer Research and Education Program (MAREP) with input from persons with dementia, family members and health care professionals identified their individual information needs in order to live with their diagnosis of dementia. We summarized the significant data received and through input with the above groups prioritized the information needs. The one definitive need expressed was information targeting persons with dementia and their family members at the time of diagnosis. The outcome was a dementia “kit” to be given persons with dementia and their family members at the time of diagnosis.

In the spring of 2009, MAREP received funding from the Canadian Dementia Knowledge Translation Network (CDKTN) and began working on what would be called the Living with Dementia-Resources for Living Well project. In the fall of 2010, additional funding was received from Canadian Institutes of Health Research (CIHR) to continue our work. Through our 17-person project team of persons with dementia, family members, health care professionals and educators we have developed the Living Well with Dementia web-based resources.

It is our hope that this resource will enable those newly diagnosed with dementia and their families to have the necessary information to live well with dementia and help them prepare for the road ahead. It is also our hope that the resources provided will enable professionals working in dementia care to better support care partners with whom they work.

Over the span of this project there have been many individuals who have contributed in many ways. We would like to recognize everyone who has had a hand in the development of this web-based tool.

Financial contributions

We would like to acknowledge the financial contributions made to this project:

  • Canadian Dementia Knowledge Translation Network (CDKTN) - Education and Training Knowledge Translation Award
  • Canadian Institutes of Health Research - Pfizer Operating Grant in Disease Prevention and Management
  • Murray Alzheimer Research and Education Program (MAREP)

Working group

  • Cassandra Bechard, Former coop student, MAREP
  • Cathy Conway, Director of Quality Management & Education, Alzheimer Society of Ontario
  • Ken Cooper, Former coop student, Applied Health Sciences, University of Waterloo
  • Rhonda Crouse, First Link Care Navigator, Alzheimer Society Oxford
  • Sherry Dupuis, Former Director, MAREP; Co-Principal Investigator, Partnerships in Dementia Care Alliance; Professor, Recreation and Leisure Studies, University of Waterloo
  • Jennifer Gillies, Former Post-doctoral fellow, MAREP
  • Shelley Green, Executive Director of the Alzheimer Society of Oxford
  • Joy Greenleese, Care partner
  • Susan Gregg, Clinical Geriatric Resource Consultant for Primary Care, Canadian Mental Heallth Association Waterloo Wellington Dufferin
  • David Harvey, Former Chief, Public Policy/Programs Alzheimer Society of Ontario
  • George Heckman, Schlegel Research Chair for Geriatric Medicine at the Research Institute for Aging; Associate Professor, School of Public Health and Health Systems, University of Waterloo; Assistant Clinical Professor of Medicine, McMaster University
  • Shannon Knutson, Former Research Assistant, MAREP
  • Brenda Hounam, Person living with dementia
  • Justin Lau, Former coop student, MAREP
  • Ken Le Clair, Professor and Chair of the Division of Geriatric Psychiatry, Queen’s University and Co-Director of the Centre for Studies in Aging and Health, Providence Care, an affiliate of Queen’s University
  • Linda Lee, Care of the Elderly family physician, Director of the Centre for Family Medicine Memory Clinic, Schlegel Chair in Primary Care for Elders, and Associate Clinical Professor in the Department of Family Medicine at McMaster University
  • Lisa Loiselle, Former, Associate Director of Research, MAREP
  • Sabrina Lim, Waterloo Wellington Local Health Integration Network, Primary Care Physician Lead
  • Jim Mann, Person living with dementia
  • Carrie McAiney, Associate Professor in the School of Public Health and Health Systems, University of Waterloo and Schlegel Research Chair in Dementia with the Research Institute for Aging; Co-Principal Investigator Partnerships in Dementia Care Alliance
  • Janet McKeown, Former graduate student, MAREP
  • Jane Mederak, Person living with dementia
  • Lisa Meschino, Former post-doctoral fellow, MAREP
  • Robert Nelles, Care partner
  • Kathleen Nimigon, Former volunteer, MAREP
  • Lukmon Olaatanda, Former volunteer, MAREP
  • Mary Perry White, Provincial First Link Program Consultant, Alzheimer Society of Ontario
  • Zara Rafferty, Former Knowledge Translation Specialist, MAREP
  • Cathy Ross-Herbert, First Link Coordinator, Alzheimer Society of Brant
  • Leah Sadler, Former Director of Research, MAREP
  • Sero Communications, French Translation
  • Peter Son, Former coop student, MAREP
  • Lindsay Sprague, Former Knowledge Translation Specialist, MAREP
  • Terry Stewart, Director of IT, Applied Health Sciences, University of Waterloo
  • BJ Wallace, Care partner
  • Helen Wallace, Person living with dementia
  • Elaine Wiersma, Director of the Centre for Education and Research on Aging & Health; Associate Professor, Department of Health Sciences, Lakehead University
  • Catherine Zagar, Managed web support and social media, University of Waterloo

Living Well With Dementia logo