Living well - Emotional wellbeing - Dealing with feelings about a diagnosis of dementia

If you or a family member has recently been diagnosed with dementia, it is normal to feel shocked, upset or even relieved. These emotions are common. Make sure to talk to someone about how you are feeling and try to connect with other people who are also experiencing dementia.

What emotions will I experience? Click for answer

If you, or someone in your family, has received a diagnosis of dementia, it is normal to feel a range of emotions. Some people feel shocked, while other people are relieved that their symptoms have been diagnosed. Some common emotional reactions include:

  • Shock and denial
  • Anger or resentment
  • Fear
  • Feeling overwhelmed
  • Depression
  • Loneliness
  • Acceptance
  • Relief
  • Hope

We all have our own ways of coping with our emotions. The important thing is to acknowledge the emotions you are experiencing and find positive ways to address them.

Source: The information above was reprinted with additions with permission from Alzheimer Society of Canada. (2001). Shared experiences: Suggestions for those with Alzheimer disease. Toronto, Canada: Alzheimer Society of Canada.
List reprinted with additions with permission from Murray Alzheimer Research and Education Program. (2009). Living and Transforming with Loss and Grief: A 'By Us For Us" Guide. Waterloo, Canada, University of Waterloo: MAREP.

What can I do to deal with my diagnosis, or the diagnosis of someone I care about? Click for answer

When you or someone you care about has been diagnosed with dementia, it is important to find out as much information as you can about the type of dementia you or they have. Often, when you have this information it can provide a sense of control and reduce the fear that comes with the diagnosis. Create a list of questions that you have to ask your doctor. If your doctor cannot answer your questions, search out other avenues to get the information you need such as contacting your local Alzheimer Society.

It is a good idea to have someone to talk to about how you feel. This will help to get your emotions out in the open. You might want to choose a close friend or family member who you trust. It might also help to speak with others who are living with dementia. This will give you the chance to share your emotions and offer each other support. Refer to the how to meet others affected by dementia section of this website.

Source: The information above was reprinted with additions with permission from Alzheimer Society of Canada. (2001). Shared experiences: Suggestions for those with Alzheimer disease. Toronto, Canada: Alzheimer Society of Canada.

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